MODELS FOR PRACTICE

FOCUS AREA: CANCER

 

 

Program Name: Kokua Program (Hui No Ke Ola Pono)

Location: Wailuku, Hawaii

Problem Addressed: Cancer

Healthy People 2010 Objective: 3

Web Address: http://www.HuiNo.org

 

 

SNAPSHOT

 

Hui No Ke Ola Pono is a private, non-profit, health enhancement agency. It is a community-based 501(c)(3) organization that serves uninsured or underinsured Native Hawaiian, Pacific Islander, and Filipino women. The agency is accredited by the Commission of Accreditation for Rehab Facilities (CARF). The Kokua Cancer Program is one of many programs of Hui No Ke Ola Pono; other programs are prenatal education, diabetes self-management, and nutrition. The Kokua Program provides breast and cervical cancer education presentations through outreach, enrollment with individuals, ‘ohana’ (family), or with various organizations. Services provided include clinical breast exams (CBE), Pap tests, mammogram screening, blood pressure screening, glucose screening, cholesterol screening, transportation, and case management that consists of following up through resolution of abnormal results or diagnosis and treatment. The geographic service area is the island of Maui covering 727 square miles, with a total population of 117,644. There are 33,093 Native Hawaiians and part-Hawaiians in Maui County. Maui’s geography is varied and poses significant problems when planning for networking and outreach, and it constitutes an accessibility problem for residents.

 

THE MODEL

 
Blueprint: The Kokua Cancer Program is a collaborative partnership among six organizations, which include: Hui No Ke Ola Pono, (Maui’s Native Hawaiian health care system); Maui Community College Health Clinic, which consists of a nurse practitioner who supplies CBE and Pap tests; American Cancer Society, which grants educational material on breast cancer, cervical cancer, and cancer resources via the Internet; Maui Medical Group Radiology, which makes mammogram screening available; Maui Radiology Consultants, which also provides mammogram screening; and Cancer Research of Hawaii, which offers cancer information services that provide staff training on breast and cervical cancer, outreach strategies, and skill updating. All six partners are original stakeholders in the Kokua Program. The program is supported in part by a three-year $600,000 Federal Rural Outreach Grant (1999–2002) to provide breast and cervical screening for Native Hawaiians, Pacific Islanders, and Filipino women.

 

Kokua’s paid staff consists of a registered nurse who is also a health educator and clinical case manager, a program coordinator, two outreach health care workers, and a clerk receptionist. Hui’s Medical Director and program medical doctor donate their time for clinical and case management to the Kokua Program. The volunteer staff for the Kokua Program consists of seven gatekeepers to access the Native Hawaiian community, Pacific Islander community, Tongan community, and Filipino community. These gatekeepers provide information to the program staff on the communities’ culture, beliefs, norms, traditions, customs, history, and language and also volunteer as interpreters.

 

Health Care Workers (HCWs) provide education upon clinical intake and through the enrollment process. HCWs provide presentations at various organizations, such as Hawaiian civic clubs, Hawaiian churches where Pacific Islanders attend, senior adult organizations, health fairs, women’s prisons, women’s rehabilitation centers, homeless shelters, and community events. HCWs provide transportation to clients from their residence to enrollment, Pap test, and mammogram screening appointments. Medical problems that are identified as a result of the clinical assessment/screenings are referred out to a primary care physician. All clients are provided enabling and entitlement services, such as transportation, applications for Social Security, MedQuest (the state’s Medicaid program), and emergency funding for health needs.

 

Making a Difference: The program’s goals are measured against two Healthy People 2010 outcomes and outreach targets: 1) increase to 70 percent the proportion of female clients aged 40+ who have had a clinical breast exam and a mammogram within the preceding two years and who have been instructed in self breast exams; and 2) increase, to at least 95 percent, the proportion of female clients age 18 and older who have ever had a Pap test and increase to at least 90 percent those who received a Pap test within the preceding three years.

 

Outreach: The program is based on the Hawaiian value “Kokua” (helping each other). The focus of the program is to outreach and educate women who have not participated in regular screenings. One outreach strategy is to use ‘ohana’ (family) style outreach to three or four women of the same family or friends helping the women feel more comfortable. This works for the Pacific Islanders also.

 

Enrollment: A clinical intake and education approach are used as a bridge between traditional Hawaiian culture and medicine and Western medicine. This is accomplished by providing health education in a “talk-story” manner that demystifies Western clinical practices. In Hawaii, “talk-story” is an important social convention for sharing information informally, finding common ground, and getting to know each other. The staff have established close relationships with this target group of women and have gained their trust.

 

Completing the Screening: One-stop screening is achieved by scheduling the CBE, Pap test, and mammogram screening on the same day. The convenience of one-stop screening is attractive, especially because women find it hard to take off work, find childcare, etc.

 

Providing transportation eliminates geographical barriers. Clients are picked up and transported, scheduling five and six women at a time. The ‘ohana’ style scheduled screening for family and friends, with same day Pap test and mammogram screening, helps eliminate fear and shame.

 

Makana (gifts) are given as incentives after the women complete the Pap test and mammogram screening. The first year of the program, t-shirts with the program’s logo was given. The second year, a tote bag with the program’s logo were given.

 

Tracking and Case Management: The Health Pro Database is used to manage the client roster, results, and tracking of clinical encounters. A program/case management algorithm was developed to show the flow of clients from education and outreach through basic case management and, if needed, resolution or treatment and intermediate case management with the case management team.

 

Performance Measurement: The program has also established outreach target goals for Hawaiian, Pacific Islander, and Filipino women.

 

Beginnings: Pre-grant meetings and a series of focus groups composed of underserved women set about to address the questions of defining barriers to cancer screening in the region. A survey was developed to gauge clients, the community, and program partners. A Maui Cancer Research Team performed a study to determine motivational factors and specific barriers to breast and cervical cancer screening.

 

Challenges and Solutions: Barriers encountered include: cultural beliefs regarding health, language, fear, shame, mistrust of Western medicine, financial, accessing health care services, limited knowledge of available health resources, and geographic isolation in remote rural areas.

 

The majority of the population in the service area mistrust Western medicine. The staff provides culturally sensitive services and clinical counseling by focusing on outreach services, which integrate modern medical care with traditional Hawaiian values, beliefs, and practices.

 

PROGRAM CONTACT INFORMATION

 

Lucille Caba, Program Coordinator

Kokua Program (Hui No Ke Ola Pono)

95 Mahalani Street, Room 21

Wailuku, HI, 96793

Phone: (808) 244-4647

Fax: (808) 222-6676